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Spoonfull app interface showing simple communication options

An app that helps explain what you need.

Spoonfull Crash Companion™ was built for people with ME & Long Covid to communicate needs to caregivers and helpers in just a few taps — no speaking, typing, or pushing through brain fog.

Why Our Community Needs Spoonfull

Our research uncovered the key challenges faced by people with ME & Long Covid when trying to communicate during crashes:

Identifying Needs

Too weak to speak, type, or think clearly.

Emotional Hesitation

Feeling like a burden.

Cognitive Overload

Too many steps when energy is low.

Caregiver Misunderstanding

Needs misinterpreted without context.

"

Trying not to ask for too much because I feel like a nuisance

— Patient Survey
"

It's impossible to ask people for help because they don't understand...

— Patient Survey
"

Sometimes I think they are resting, but really they are in pain or panicking quietly…

— Caregiver Survey
Spoonfull app showing crash mode and communication features

Features Built for Crashes

Simple Tap Communication
Energy Status Updates
Dignity & Safety
Affirming Language
Crash Mode
Crash Plan Builder

Cognitive-Friendly Design:

High contrast
Large touch targets
Minimal cognitive load
Dark mode

We're Building This Together

Created from lived experience — we believe the best tools come from the people who will use them. We also know that our caregivers are our lifelines. Spoonfull supports them with clarity, confidence, and peace of mind.

We're looking for:

Partners who share our mission

Volunteers with lived experience

Survey participants

Help Us Build Better Tools

The surveys below will help us better understand the communities needs.

Patient Survey

Share your experience living with ME or Long Covid to help us build better tools.

Take Patient Survey

Caregiver Survey

Help us understand the caregiver perspective and how we can better support you.

Take Caregiver Survey